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Saturday, January 8, 2011

We knew it would happen

Well, we knew it was coming, but it doesn't make it easy. More babies were admitted a couple days ago, Nursery C was opened up, and Hazel got moved. There's a good chance she'll go home before Jude even makes it there, which means we might not be together again as a family for a couple of months. I know it's a good thing for Hazel, but it's SO much nicer to have them next to each other!

Hazel is still doing well with the bottle with the small amount. We're eager for her to be ready to take more at a time! We're very thankful that she has got the suck, swallow, breathe thing down decently well.

Jude is having a really tough time with gagging. The combination of his feeding tube and the high flow of oxygen he's receiving is suddenly causing him to gag a lot. If we pick him up, or he gets turned over, he gags and then bradys (heart rate drops low) and majorly desaturates (oxygen level drops low). Hazel's feeding tube is in her nose, which helps the gagging issue, but Jude's oxygen requirement is still too high for that to be an option for him. It's very frustrating because we haven't held him in a couple of days (we've tried, but this keeps happening and we have to put him back right away) and he just seems really uncomfortable. I would also if I had a tube down my throat and lots of air being blown into my nose (with a few occasional water drops, which don't help anything)! I wish his oxygen requirement could go down significantly, but it's a very slow process. If he required less air flow, he could get his tube moved and/or try a bottle. We're just waiting, but it sure is hard.

3 comments:

ChristenB said...

Sorry friends for the setback. I can't imagine how uncomfortable that little man is right now... but you two are incredible parents - and I know that your love and patience make a huge difference.

chaddykathi said...

Hey guys....just wanted you to know we're thinking and praying for your two little ones and for you as well! Thanks for keeping us updated on how everything is going...praying you will all be home as a family very soon!

don and sara said...

Thanks for the update- we'll keep praying for all four of you!