It's been a rough day here, especially for Hazel. She has just been refusing to eat. She did eat her last feed, but threw it all up at 3 separate times. I can deal with the vomit, but the refusal to eat is a lot more worrisome. We're praying she feels better through the night and over the next few days so that we don't end up in the hospital before our GI appointment Thursday.
We're very excited for tomorrow though! We have an appointment at the pulmonologist (FINALLY!) and are very hopeful that Hazel will be weaned from her oxygen. She seems to be pacing herself and breathing very regularly while eating, so we think she probably doesn't need the O2 anymore! Let's hope the doctor agrees. :) It will be so nice to get rid of one oxygen machine and a few tanks. Next step, get Jude off! I can't tell you what a celebration it will be when he's off oxygen. We'll be able to carry him around freely (not hooked to a cord), leave the house more easily, and graduate from one of our specialists! We also won't always be fighting with him to tape/untape the cannula on his face, or be worrying about whether or not he's pulled it out (he's quite good at that despite our taping efforts). We're not sure if he's ready for weaning yet or not, but hopefully we'll get a better idea of how long-term this is from the doctor tomorrow.
It's going to be a busy week with 4 appointments for Hazel and 2 or 3 for Jude. Noel's feeling a bit under the weather, which is just about the last thing we need right now! He has lots going on school wise and ordination wise as well as parenting. Please pray for strength for all of us!
5 comments:
remembrin u folks
will be praying
You're in my thoughts today. Hope there's good news at the doctor and things go better with Hazel. And that somehow some rest can come for everyone!
Although I was not premature in my birth, I will let you know that I was not a big fan of eating either. My 3-month old pictures have sunken in temples, gaunt cheeks, and thin limbs. But I will let you know, today I battle the bulge at a "healthy" overweight weight. I have been thankful all of my days that my height has hidden most of it. So altho, today looks grim-ish because your kiddos are not a fan of eating and it is probably extremely hard to look at the big picture of the rest of their lives, I will have you know, that this will probably not be a life-long condition and that there may even be, if ever-so-small-a-hint that during their teen years and those agonizing growth spurts, you may even wish they had a bit less of a desire to eat you out of house and home! I am glad they are doing better and that they are well enough to be home!
Thank you! I am a freind of a friend of a friend and we had a preemie (8weeks early) and brought her home 2 days before her due date just one week ago. My friend reffered me to your blog and it has been wonderful and heart wrentching to read about your journey. Your faithfulness through all of this is so encouraging for me as I face similar challenges daily and turn to God for His strength. Thanks for being willing to share this story God has given you and help to further His kingdom through it. We have very long feedings as she still hasn't taken to a bottle and is home on an NG tube (that she pulled out this morning during the feed!) and a monitor because of the tube. Can't wait till she can and wants to eat herself and there will be no more wires! I'll be praying for your family ~Wendy
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