And I'm not referring to basketball. It's going to be a crazy month for the Snyder household. So far, we have 12 scheduled doctor's appointments this month for Hazel and Jude (more for Jude than Hazel). That's a lot! Let's hope we don't forget any or end up having to schedule more due to illness. Thankfully, we finally have appointments for both of them at the pulmonologist. Hopefully this will give us a better idea of how long we'll still need oxygen around the house. We will definitely be throwing a party when it's gone! Please pray that that day comes sooner rather than later! It will be so nice when their lungs are strong enough to be off oxygen. It will make getting out (to doctors and for short walks) much easier as well.
Just a glimpse into our feeding life: Jude is on a rotation of 3 different "formulas" to meet his calorie and reflux needs. He's also on a rotation of 4 different meds (1 he gets every feeding, the others are dispersed 2x every 24 hours). Being sleep deprived sometimes makes it very difficult to figure out which formula goes with which meds. We have it written down, but it takes every ounce of brainpower to actually execute what's written on the schedule. And then there are those times when Jude wants to eat more often than what our schedule says, so we have to recalculate when to give what meds and what formula so that the 24 hour total is correct. Exhausting. But, he's growing and rarely throwing up. That's what matters.
Hazel's much easier: 2 meds twice a day and only one fortified breast milk concoction (though we may end up going to 2 with her as well, but the details of that are hardly necessary).
We're tired. But, we haven't collapsed yet!
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