No Cuddle Care

Jude does not seem to be tolerating the SIPAP very well, so I wasn't able to hold him today. It was disappointing and frustrating since neither of us think he'd do any worse being held, but we have to trust the nurse's and respiratory therapist's opinion. Right now they are watching him very closely since he's requiring a lot more oxygen than he was when he was on the vent. Also, his blood gases are border line acceptable. We will not be surprised if he's reintubated by tomorrow. It's disappointing, but it's better for him to get the help he needs and not be on such a high percentage of oxygen. If he is reintubated, we are praying that he does not get a bleed like he did last time. We are also praying that he does not get another infection. These things would really set him back (like they did before). We are really hoping that he just might need another week on the vent. The doctor told us today that it is not uncommon to have to reintubate.

It seems like breathing just clicked for Hazel over the past couple of days. She is doing so well on the nasal cannula. She is having less apnea than before and most apneas are self-corrected. She is receiving 2.5 ml/hour of breast milk and so far has not spit up. As they increase the amount and she approaches 4 ml/hour, we pray that she is able to tolerate it. She would need to reach at least 10 ml/hour before getting her picc line removed and we're very anxious for that to happen! That's the last IV that needs to be removed on either of our kids.

Thank you for your continued prayers.