Well, we're happy to report that Hazel and Jude are still together. The baby that was supposed to be discharged from Nursery C didn't go home, so there was no space for Hazel. We're happy for us, but I'm sure the other family was disappointed. We're hoping that we can spend many more days together.
Jude is still not really progressing. He's really struggling to gain weight, which is partly due to the respiratory obstacles he's had to overcome and is still working to overcome. He continues to have his major "dives", which makes us very nervous. He's going to be seen by an OT tomorrow, which we're excited about. She will come up with a "plan" for him for eventual feeding, visual training, muscle strength, and more.
Hazel is still growing a lot and is almost 5 and 1/2 pounds. I think she's about a full pound heavier than Jude now. She is tolerating her condensed feedings thus far and her feeding amount has been increased quite a bit over the past few days. Once the amount stops increasing, we think they'll work on condensing more to prepare her for bottle feeding. She's still in the incubator, but will hopefully be out within the next few days. The doctor just wants her to be able to focus solely on eating and not have to worry about maintaining her temp at this time.
It's been a difficult couple of days, especially for me (Heidi). Sometimes we just hit a wall where we find ourselves completely drained emotionally (and physically) and thinking about going back to the hospital one more day is almost too much to bear. (Just a wee bit of honesty about our emotional journey...)
6 comments:
Hang in there! The hospital is a crazy place with a time zone of it's own. You don't want to go, you can't wait to get there, you can't leave and you can't wait to get out of there...all at the same time! Concentrate on your kids, take a few minutes to let yourselves be "normal" once in a while and keep an eye out for all the "God moments"! He is there with you, that's for sure! If you haven't started one already a journal documenting all those "God sightings" is a great way to look back on his faithfulness!
Praying for you all,
Lisa Wiersma
So many of us are praying for all of you,,,Hang on, He is there with you! Hugs, Deb & Ted Cox
Love you four... thanks for your honesty. You two are unbelievably AMAZING parents...
I'm glad you shared how you're doing- it helps to know, and we'll be praying for all four of you!
praying for strength and development for your little ones. praying also for you as parents also as you go through this emotional and physically draining time too. take care, Kara
My heart goes out to you. Know we are praying. May your strength be renewed each morning and each time you drive to and from the hospital. Many hugs your way.
Post a Comment