Exciting news

We received good news today, but it means that our lives are going to get even more complicated starting next week. The doctor plans to discharge Hazel the middle of next week. However, she still needs oxygen when she feeds, so she'll be coming home with that. As soon as all of her "home care" is arranged with our insurance company, she will get her car seat test. Assuming the home oxygen is arranged soon and she passes her car seat test, she should be home in less than a week! We're bummed about the oxygen requirement and are hoping that it's only necessary for a very short time (the doctor predicted about a month). Maybe she will miraculously stop needing it over the next few days and come home without it. It doesn't hurt to pray for that! We're trying to figure out how we'll continue to visit Jude with Hazel at home, but I'm sure we'll figure it out when the time comes. It may be a long few weeks!

Jude's cranial ultrasound looked "good" this week. The ventricles are slightly smaller and the blood is continuing to reabsorb. Also, there are no cysts present at this time. That's the best news we could receive given the condition he has. The doctor thinks all of his liver tests are in now and they all came back negative, which is great. The GI doctor still needs to look at everything, but most likely the dysfunction will work out itself out with time. Jude has been doing well with the bottle and even gulped down his entire feeding today (46 mL)! Maybe he'll be able to try it more than once a day sometime soon!