It's crazy to think that next week at this time, we will be sitting at home with Hazel (hopefully!). We'll find out more tomorrow about when that will happen. It's dependant upon when the home oxygen company can meet us and set up everything for us. We're hoping it's a very short term thing since she's on the border about really needing it. She'll have to see a pediatric pulmonologist, who will eventually decide when to stop it. Hazel had her car seat test last night and passed, so as soon as we're ready with the O2, she'll be discharged!
Jude is now over 6 lbs! I guess the 30 calorie formula he's getting twice a day is really helping. He is throwing up quite a bit, which could be a combination of him not liking the formula and the many medications he's taking, or maybe even reflux...we're not sure. At least he's still gaining weight. Who knows, he may even catch up to Hazel soon (she's 6 lbs 14 oz)!
Jude was switched from the high-flow nasal cannula to the regular flow today. He is down to 1 liter, which is great! He will be weaned 1/4 liter at a time from here on out. We are really hoping he tolerates it and is able to come home without oxygen. That would be such a miracle! He has had so many complications, but has really made a lot of progress the past couple weeks. Please pray for no oxygen for him! Hopefully he will be coming home soon as well.
We're pretty much set at home and are just trying to do some final organizing and cleaning. Life could get pretty crazy this week! We're praying for good health for us as we enter this next phase, patience as we adjust to being "full-time" parents to Hazel, and maybe even a little bit of sleep...but that may be asking too much. :)
2 comments:
We are so happy for you all, for this blessing of bringing her home! Very happy news.
This is such encouraging and exciting news. We'll be praying as you all go through this transition and that the kids will continue to improve.
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