The plan right now is to discharge Hazel on Wednesday. The home oxygen is being set up tomorrow. Hazel's doctor is trying to get her off the diuretic she's been on before she goes home. He cut the dose in half today and will stop it tomorrow. If she is still doing okay (it may affect her respiratory ability and/or urine output), she'll go home Wednesday. We're hoping she does alright without the diuretic because it would also enable her to get off 3 additional medications that she's on to counteract the side effects of the diuretic. It would make caring for her much easier and hopefully help her finally balance out her electrolytes and strengthen her bones! If she's not doing okay without it, I'm not sure what the plan is. I guess we'll cross that bridge if we come to it.
The doctor is trying to get Jude off his O2 by the end of the week. Noel and I both think that is quite ambitious, especially considering the way Jude was breathing today. But, he's been known to surprise us! We think he will need another week and a half or more though before being successful without it. We actually have thought all along that he'd come home on O2, so the fact that the doctor wants to completely wean him off soon is very exciting to us! He still has a long ways to go with his feeding, so maybe by the time that's all in order, he will be free from his cannula. That would be awesome!
6 comments:
Heidi and Noel
Our praises are being given to God BIG time. As I sit here typing this, Shaun is flying into Sacramento, CA for a conference for his work until Friday. (arrival time 6:55PM) To be in the same state but not able to be able help you guys get ready for Hazel's homecoming is kind of on the strange side.
We will continue to pray for all of you. We are hoping to send another package in a few weeks when things settle down a bit.
Walking In His Ways
Belinda and Shaun
Wow! Looks like your kids have a lot of momentum going lately! We are so excited for Hazel to be coming home with you this week! Yippee!!!! Let us know how we (and your neighbors) can help make the transition as smooth as possible.
Hi Heidi
God sent me this wonderful website that I had to share with you. Take a peek at the entry 1-24-2011
The gift of learning to breathe.
http://www.aholyexperience.com/
Belinda
Yahoo! I'm so excited for you guys and also for seeing the Lord's hand in this each step of the way. My prayers continue for health and healing for both your kiddo's. We would love to bring a meal to you guys as I'm sure full-time parenting is going to sap what little time you have left of your afternoons (in a good way!), at least until you all get into the swing of things. :-) I can't wait to meet Hazel, and hopefully Jude soon too.
Oh my gosh, that is so amazing!!! So happy to hear the kids have gained so much weight and that Hazel is going home!
We are praying for you on this BIG day. Welcome home Hazel! Hopefully as soon as you get used to having one at home --then you will be bringing Jude home too. Sending prayers for a smooth transition and some sleep tonight. Let us know if we can do anything to help.
Liz Daley
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